When you think about the word ‘hospice’, what images come to mind? A grey place where people go to die? A place of sadness, illness and overcooked cabbage? You wouldn’t be alone – these are certainly some of the things that I conjured up in the past.
But I want to tell you about a hospice. Well, two, actually. Children’s hospices. They are places where children and young people with life-limiting conditions go to be cared for and yes, perhaps to die. However, they aren’t drab, they aren’t depressing or oppressive and there isn’t even a whiff of overcooked cabbage.
Christopher’s in Guildford and Shooting Star House in Hampton together make up Shooting Star Chase. These two amazing places serve families across south-west London and Surrey, helping to manage the care for children and young people with life-limiting conditions, and their families. I provide editorial support to the charity (and even voice-over work) – I’ve just finished doing some editorial work on their supporter magazine and my head is full of the tough, but inspiring work that Shooting Star Chase puts in to make the lives of the families they work with immeasurably better.
They don’t only manage and care for the medical needs of children and young people, but their emotional and psychological needs too. Nurses and carers get to know a child’s likes and dislikes, their habits and comforts, as well as their medication and therapeutic requirements. Chefs, maintenance staff and volunteers strive to create an atmosphere of support, relaxation and fun. Social workers, care managers and support staff work hard to make sure children and young people get the best care possible.
I was lucky enough to visit Shooting Star House about a year ago, to see for myself the fantastic facilities, meet one or two of the care staff and even have a fine cup of tea from the creative kitchens. It was a privilege to see everything in action and a help to my editorial work for the charity, to have seen the facilities within which the stories are all set.
I’m writing this partly because my mind is buzzing with the stories of children, young people and families well cared for, but also because their story, and the stories of children’s hospices around the country, needs to be heard more widely. Financially, Shooting Star Chase only gets a tenth of what it needs from government funding, and so has to raise the remaining 90% itself. And when your care bill tops £10 million each year, that’s a big ask.
So, if you live in south-west London or Surrey, why not find out how you can support these two fine establishments? And if not, is there a children’s hospice near you that can make use of your time or money? That places like Shooting Star House and Christopher’s have to rely of charitable support is discomforting, but the work they put in to make the lives of children, young people and their families immeasurably better is worth every penny.
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